This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility
fibromyalgia
https://x.com/davytennison/status/1841860316314902561
Davy, my colleague at UCL Department of Science and Technology Studies is looking for UK research participants with #Fibromyalgia 📣
❗️Specifically: if you have FM, are over 18, and are *not* a cisgender white woman, I would love to get your perspective on living with, and seeking healthcare with, FM.
Mitochondrial function in patients affected with fibromyalgia syndrome is impaired and correlates with disease severity - PubMed https://pubmed.ncbi.nlm.nih.gov/39632893/
Folks with chronic health issues, I can't stress enough how much a good sun hoodie has helped me with handling summer
They're marketed toward outdoor athletes, and most of us with chronic illness are pretty outside that circle so you may have missed their awesomeness!
Here's a good video on comparisons between hoodies. I have two, one REI brand that seems to work well, and a Taema from Arcteryx that works a bit better.
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RE: https://disabled.social/@ahimsa_pdx/116641683206006955
if there is one thing i’ve learned from the pandemic is that #LongCOVID isn't unique; that other viral infections ―especially #influenza― can leave us with long-term chronic illnesses after we’ve “gotten over” the infection.
got me thinking when did i start feeling achy all the time? am almost certain i developed #fibromyalgia after a bad #flu infection, turned into “walking” #pneumonia in the 1990s.
can we correlate the explosion of chronic diseases with the normalization of #flu infections?
IN OTHER LIFE AFTER #FuckCancer NEWS
am in massive pain on my #mastectomy side and am literally exhausted from the pain.
i already had to deal with #fibromyalgia but when the #lymphedema decides to hit hard, it takes me out.
so if you are also suffering from chronic pain, loudly or in silence, i see you.
my doctors have been amazing but i wish the whole USA health care culture took pain seriously. there has to be a better way than leaving these side effects to chance.
I'm continuing to offer my latest album for free for #DisabilityPrideMonth!
I live with #longCOVID, #fibromyalgia, and #MECFS.
I'm also autistic and suffer major depression.
I wrote this song grappling with what resistance and activism might look like given the limits my disabilities impose. I hope it may offer you some respite as we fight an increasingly cruel system.
https://arendleejessurun.bandcamp.com/track/youre-not-the-only-one-atlas-song
RE: https://mastodon.social/@blogdiva/116590756282794370
IN OTHER #VACCINES NEWS
almost forgot to update y’all on my #shingles vaccinations: my pharmacist did call me to remind me of the second one. got it yesterday and today am a bit of an achy mess. not a surprise, since am #autistic with neurosensitivities and suffer from #fibromyalgia.
enisgüeis, if you got it right after me, your second shot is coming up soon.
am finally up to date with all my #vaccines. are you?
In reflecting back on my life as an AuDHDer with interoception, I think it wasn't always present.
Instead, I think as my Sjogren's and fibromyalgia all-over body pain became a part of my daily life, I tuned my body's needs out more and more.
Does this resonate with anyone else?
@autistics #ActuallyAutistic #ActuallyADHD #Interoception #Fibromyalgia #Sjogrens