chronicillness
![2 frame comic
1st frame: [10 years ago] A monster (chronic illness) enclosing a girl "what is happening?"
2nd frame: [now] *a girl eating cereal with her monster* "oh hey buddy, what's up"](/proxy/post_attachment/247557/bc1736f04a.png "2 frame comic
1st frame: [10 years ago] A monster (chronic illness) enclosing a girl \"what is happening?\"
2nd frame: [now] *a girl eating cereal with her monster* \"oh hey buddy, what's up\"")
Comic by howbabycomic.com. Perfect for people with chronic illnesses and disabilities
#chronicillness #mentalillness #autoimmune #chronicallyill #chronicillnesshumor #chronicillnessmemes #autoimmune #fibromemes #fibromyalgia #spoonie #mecfs #disability
When I was 21…I was told I was likely infertile and that pregnancy could and probably would kill me. I was denied a tubal ligation and/or hysterectomy because I “might meet a man who wants kids”.
It was a horrifying look at how deep misogyny runs in medicine - and how little women are trusted to know their own bodies and make decisions for their health.
I eventually had the hysterectomy- but only once it became an emergency because I was bleeding to death and they couldn’t stop it. The surgery was more traumatizing and dangerous because I wasn’t afforded the time to adequately prep.
I’m grateful to have survived - and sharing my story in the hopes it helps other women feel less alone. I hope it challenges doctors and healthcare workers to think differently about how they treat women and realize that not ALL of us can become mothers (and not all of us WANT to either).
At the end of the day - a man wouldn’t have had these issues if he wanted a vasectomy. He would have been trusted to know his body. He wouldn’t have been treated like an incubator and I sincerely doubt many men are asked whether they’ve considered that they could meet their “dream woman” and she might be angry about their sterility.
There’s no stigma about the childless cat man.
https://www.disabledginger.com/p/pregnancy-will-likely-kill-you-but
#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #chronicillness #keepmasksinhealthcare #endometriosis #abortion #womenshealth #reproductiverights #gynecology #misogyny #infertility #childlesscatlady #bodilyautonomy
I just had my first doctor tell me to ‘take off your mask so I can see your pretty face.’
I was there for an issue with my FEET. There was absolutely no reason for me to remove my mask.
I don’t know how much of this was misogyny and how much was related to pandemic politics (ie perhaps this doctor resents having to mask)… but I was incredibly uncomfortable with his remark.
I declined - as politely as humanly possible - and the whole tone of the appointment changed. I didn’t even get a diagnosis - I was told that the issue on my ankles was ‘not as ugly as I think’ ( I didn’t think it WAS ugly) and sent on my way.
I waited 18 months for this appointment - and the ‘issue’ is likely related to my vEDS and possibly severe. Multiple other doctors have expressed concern but said I had to wait for a specialist.
When patients are treated this way - it causes harm. It causes a distrust of the medical system. I can’t just ‘get a second opinion’ when the first one took 18 months.
When I’m less angry I may write an article about this - because patients (especially female presenting) deal with this crap FAR too often.
In the meantime - this experience underscores why we must always have an advocate with us in healthcare settings. It shouldn’t be this way - but it is.
My article on how to be the best possible advocate for a disabled patient: https://www.disabledginger.com/p/how-to-be-an-effective-advocate-for
#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans #bullying #CleanAirClassrooms
Request from Phoebe Petrovic:
"Chronically ill/disabled/long covid-havers and #pwme:
I want to hear your stories.
Have you been denied care or adequate infection control protection while getting care? Are you a worker denied the ability to protect yourself with an N95? What barriers have you faced to equal treatment?
Please get in touch if you've experienced this in the USA. My contact information is in my bio."
https://bsky.app/profile/phoebepetrovic.bsky.social/post/3lcv4desaas2v
Its not just a #covid thing. It's a #chronicillness thing... Doesn't matter if it's #asthma and-- just use inhalers, or #pain-- just take pain killers, or viral illness-- just take suppressants.. it's always about pushing through it instead of treating the problem. The mold, or allergens. The rest and recovery. The healing. The cleaning. The fixing. That takes time that costs THEM something.
Even if you think you’re the exception and you will never become chronically ill, wear a mask.
Even if you’re “young and otherwise healthy”, wear a mask.
Even if your last covid infection was “mild”, wear a mask.
Do it for those who may not be as lucky, and do it to protect your long term health
#covidisairborne #covidisnotover #longcovid #chronicillness #disability
BIG HEMP continues to hype CBD extracts from fertilizer-ladden mechanized crops that carry heavy metals and toxins, as hemp is one heck of a bioaccumulator.
The clean and effective ancestral cannabic medicine is made from artisanal organic flower, and darn simple to prepare at home for many health conditions.
In the post linked I explain all the scientifically proven properties of cannabis tea made from dry "recreative" flower.
It produces little to no high, since its THCa and CBDa based (acidic raw versions of THC and CBD).
#medicalcannabis #healthcare #cannabismedicinal #cannabis
#cbd #thc #cbda #thca #weed
#marihuana #marijuana #health #cannabisscience #science
#ImmuneSystem #autoimmune #selfcare #neurodivergent #depression #chronicillness #chronicpain #pain #ptsd
#regenerativemedicine #solarpunk #naturephotography
#JorgeAlbanPhotos #ThickTrunkTuesday #slowart
If the person in charge of health and human services stands up and calls diabetes an “exotic disease” and says he has never heard of lupus or crohn’s… he should immediately be fired for gross incompetence.
This is eugenics. RFK Jr is going after disabled people so the country doesn’t have to pay for them.
His insistence on repeatedly bringing up how many kids can serve in the military gives the game away.
health supremacy and fascism are a risk to everyone. They may start with the disabled, but they won’t stop with us.
#uspoli #fascism #chronicillness #disability #ableism #eugenics #rfkjr
FRIEND: Do you want to hike the Appalachian trail with me?
ME: Last night I got tired from eating a carrot.
#chronicillness #chronicfatiguesyndrome #chronicillnesshumor
Dr Oz says being healthy is a patriotic duty
Worse, he says they spend 70% of Medicare & Medicaid funds on chronic illness & aren’t “getting their money’s worth”
This is the quiet part said out loud.
They don’t want to cure chronic illness, they want us to take the blame.
They don’t want to pay.
They aren’t even being subtle anymore. They’re making lists of people with autism. They deride those who can’t work or serve in the military.
“Wise decisions” would be universal healthcare. Universal basic income. Addressing poverty, food deserts and income inequality.
This isn’t “wise decisions”, it’s eugenics.
#rfkjr #uspoli #fascism #eugenics #disability #ableism #chronicillness
🚨 Call to action! 🚨
#MEAction has written a letter to NIH demanding full funding for the ME/CFS Research Roadmap
And they've asked folks to sign on to this letter:
https://airtable.com/appEwdLZCdtR0xwuv/pagMvv9RZYLxZiDFe/form
From the letter:
"NIH budget for ME/CFS is $13 million for fiscal year 2024/25– the lowest in comparison to its disease burden of any disease monitored by NIH"
Even if you don't sign please boost 🙏
Thank you! ❤️
@mecfs @longcovid
#MEcfs #PwME #LongCovid #NEISVoid #ChronicIllness #Disability
The Trump regime continues to double down on their eugenicist choices, nominating Casey Means, a wellness influencer, for surgeon general.
I’ve said for a long time that “wellness” is eugenics adjacent.
While there’s nothing wrong with a healthy lifestyle, no amount of green juice, yoga, meditation or sunlight can cure disabilities.
What’s worse, wellness “influencers” almost always blame the chronically ill for not trying hard enough.
Between Means, Prasad, RFK Jr and Dr Oz, things look bleak for those with disabilities (but great for anyone hawking supplements!)
https://www.politico.com/news/2025/05/07/trump-surgeon-general-casey-means-00334304
#ableism #eugenics #chronicillness #uspoli #fascism #wellness #rfkjr #caseymeans
🧵 "Two Households, Both Alike in Indignity: An Interview with Anne Ursu"
https://lithub.com/two-households-both-alike-in-indignity-an-interview-with-anne-ursu/
Anne Ursu is the author of Not Quite a Ghost, a middle grade novel about "an eleven-year-old, Violet, who comes down with a post-viral illness"
I'll post a few quotes in the replies.
1/n
@mecfs @longcovid
#MEcfs #PwME #LongCovid #PwLC #ChronicIllness #PostCovid #PostViral #MedEd
RFK Jr talking about the need for doctors to know how to treat measles for those who are unvaccinated.
“Only very sick kids should die from measles.”
No. They shouldn’t. That was the point of the vaccine. We effectively eliminated the virus so children didn’t die.
Sick & disabled kids are not expendable!
This is yet another eugenicist talking point. Rather than encouraging people to get vaccinated, he’s priming us to believe “only the vulnerable children” will die.
#rfkjr #measles #vaccines #chronicillness #uspoli #eugenics #ableism #disability
Folks with chronic health issues, I can't stress enough how much a good sun hoodie has helped me with handling summer
They're marketed toward outdoor athletes, and most of us with chronic illness are pretty outside that circle so you may have missed their awesomeness!
Here's a good video on comparisons between hoodies. I have two, one REI brand that seems to work well, and a Taema from Arcteryx that works a bit better.
(1/2)