we talked about dissertation timeline and writing and graduation stuff today
so uh,
anyone (esp #neurodivergent and #ChronicIllness folks) got tips for writing that actually work? 😬
fwiw: “write a lil every day” is not helpful advice here that gives me literally no idea what to do thank you
chronicillness
Edit: Volunteers must register to get a link to Monday's kickoff session!
Register here:
https://docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform
🗣️ ME/CFS Advocacy Week starts on Monday, March 23
First Zoom call starts at noon Pacific, 3 pm Eastern (will be recorded)
More details in the participant toolkit, see links below.
Canva version:
https://www.canva.com/design/DAHDA3p0_NY/oTfLyW-lmGZIlbDdQfqmoA/view
PDF version:
#USPol #MEcfs #PwME #LongCovid #PwLC #PostCovid #MedEd #ChronicIllness
Edited 235d ago
Mutual Aid Request August
Didn’t meet last month’s essential needs goal again. The unmet goal needs to be added to August because it was for meds and groceries.
AUGUST ESSENTIAL NEEDS $593
Deadline ASAP:
⏳️ $250 groceries
⏳️ $218 meds
Deadline 16/08/2026:
⏳️$90 electricity and water
⏳️$35 Wi-Fi + phone data
I’m too disabled for corporate jobs, and I don’t have a fixed income. Monthly pledges are what allow me to function and continue building the mutual aid infraI’ve been working on. If you find that my voluntary work with https://mutualaidspace.org is worth supporting, please do so by pledging as little as $1 monthly via Liberapay or other tiers available across Liberapay, ko-fi, and Patreon. One-off support helps too.
Any amount helps. Sharing my request or my work also goes a long way.
Support options: https://wrzky.com/links
Real time support ledger: https://wrzky.com/psl
Any support is much appreciated. Please boost this so my request can reach further than my feed. Thank you, thank you 🙂↕️💜
@mutualaid @mutualaidspace @mutualaid @wrzky @frugalcoffee @disability @autistics @actuallyadhd @QuyetPawz @ellespeaks @edendestroyer
#mutualaidrequest #mutualaid #mutualaidspace #DisabilityCrowdfund #disability #DisabilityMutualAid #fediverse #activism #writer #DisabledWriters #fedihelp #poverty #healthcare #mentalhealth #chronicillness #neurodivergence #survivor #survivalfund #mutualaidboost #helpfolkslive
RE: https://disabled.social/@ahimsa_pdx/116495749131742719
Update from #MEAction:
"How to Participate in #MillionsMissing 2026"
https://www.meaction.net/post/your-story-can-change-everything
Some actions listed:
- Share your story on social media from May 9 to 16
- Submit your story to #MEAction's Story Bank
- Help protect Medicaid by signing the letter sent to HHS Director
- Register to join the event in Washington D.C. on May 12
#MEcfs #PwME #LongCovid #PwLC #ChronicIllness #Disability #Medicaid #FrailAndFurious
RE: https://mastodon.social/@ellespeaks/116778411963776229
boost!
Been 4 mos since receiving anything
Top items rn
1. Giftcard list, american eagle GC
2. Random needs list, cat stroller cover for rain
V: d_fay
P: peach77
Tysm🏳️🌈💜
#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #lgbtq #lgbtqia #kofi #pridemonth #pride #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@lgbtq @lgbtq@newsmast.community @mutualaid @mutualaid@fedigroups.social @disabledvoices
Hey friends. Sad bear, here. Zero spoons. Asking folks to please uplift my asks, please don't forget about me.
Yesterday didn't go very well. No progress. $2300~
It's still important that I move.
Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#mutualaid #directaid #disabled #writer #queer #lgbtq @mutualaid @mutualaid@fedigroups.social @disabledvoices @lgbtq @lgbtq@newsmast.community @creativearts @povertyandinequality #spoonie #chronicillness @spoonie
RE: https://kolektiva.social/@wrzky/116840235559384861
UPDATE. Water's still off. 100/350 raised toward getting it back, $250 left. $718 remaining for July overall.
Thank you to everyone who's given and shared my plea so far.
Please help however you can. Boosting this also helps, more than you know. Thank you, thank you
@mutualaidspace @wrzky @mutualaid @mutualaid@fedigroups.social @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @nillerus @actuallyadhd @autistics
#MutualAid #MutualAidRequest #DisabilityCrowdfund #DisabilityMutualAid #EmergencyCrowdfund #healthcare #poverty #mentalhealth #feminism #politics #disability #activism #writer #DisabledWriters #fedihelp #activitypub #fediverse #socialmedia #neurodivergence #audhd #autism #chronicillness
America should be ashamed.
No one should ever have to delay medical care due to cost.
The US is the only developed country that doesn’t guarantee healthcare to its citizens, and as a result they have extremely poor outcomes & lower life expectancy.
Healthcare is a human right.
https://www.independent.co.uk/us/money/us-medical-costs-doctors-health-insurance-b3026479.html
#poverty #UniversalHealthcare #healthcare
#uspol #disability #ableism #chronicillness
RE: https://kolektiva.social/@wrzky/116992363194993470
UPDATE 29/07/2026 01:16 UTC+7
STILL NO MOVEMENT UNTIL NOW!!
It's still stuck at 21/250 for groceries and 0/218 for meds.
I really need this met before 31/07, before I will have to worry about bills the following month. Please help within your capacity.
@mutualaid @mutualaidspace @mutualaid@fedigroups.social @disability @actuallyadhd @autistics @frugalcoffee @edendestroyer @QuyetPawz @wrzky @ellespeaks
#DisabilityCrowdfund #MutualAidRequest #DisabilityMutualAid #disability #mutualaid #DisabledWriters #writer #EmergencyCrowdfund #activism #activitypub #fedihelp #chronicillness #neurodivergence #fediverse #mastodon #anarchism #poverty #healthcare #mentalhealth
September MA Request for necessities & Ongoing Laptop Fundraiser ❣
- Laptop: $25/$400 - please put "laptop" in note!
- September: $100/$550
Please read the flyers below for more detailed info! I truly appreciate any help. Even a few dollars makes a big impact.
Thank you!
Tags:
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @mutualaid @mutualaid@fedigroups.social @disabledvoices @lgbtq @lgbtq@newsmast.community @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness #catmom @spoonie @queer
Edited 77d ago
It's like talking to doctors when you have an undiagnosed chronic illness 😂
#Ominous #Positivity
#Doctors #And #ChronicIllness #ChronicPain
Begging folks to wake up and realize that the massive increase in food borne illness and infectious diseases is not an accident.
This was always the goal.
The regime removed protections because they want “the vulnerable” to die.
Fascism and eugenics go hand in hand.
https://www.cnn.com/2026/08/13/health/foodborne-illness-outbreaks-risk-rising
#uspol #eugenics #fascism #ableism #disability #chronicillness #publichealth
I've been feeling rundown lately so not has been done on The Last Philosopher, but today the sun is shining and I feel like maybe I can get something done 😊
Edited 87d ago
Sitting down to try to do some writing...
💫 August Survival MA Request 💫
$550 needed to cover: 2 co pays, food, meds, phone bill, transport and hygiene.
UPCOMING:
$45/$85 - JULY food due 7/28
$0/$200 - AUG meds due 8/3
Thank you, anything helps. 💕
#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #lgbtq #kofi #crowdfunding #gofundme #directaid #queer #diabetic #poverty @mutualaid @mutualaid@ovo.st @disabledvoices @disability @lgbtq
Edited 104d ago
RE: https://mastodon.social/@Hanan1991/117115603087187109
Thank you, thank you 🙂↕️💜
@mutualaid @mutualaid@fedigroups.social
@mutualaidspace
@disability
@QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @wrzky
@wrzky@wrzky.com
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund
It’s Disability Pride Month and I’m mourning one of our elders…. Alice Wong.
Every year on July 1st she would talk about disabled rage.
She would remind us that it’s ok to be angry at the eugenicist, capitalist, patriarchal system we’re trapped in.
She would encourage us to embrace our disabilities AND our anger.
She would give us permission to be our true selves… to refuse to hide for the comfort of others.
She passed away last November but left an indelible mark on our community.
I want to honour her this month by continuing the tradition she started and inviting all my disabled peers to be proud, unapologetically themselves and angry if that’s what they feel.
Don’t hide.
Don’t smile and say “I’m fine” when you’re in pain.
Don’t settle for being treated as “less than”.
Don’t let the bastards grind you down.
#disability #ableism #eugenics #chronicillness #patriarchy #capitalism
Two people in Michigan have died from the Cyclosporiasis outbreak.
The media is already leading with the fact that they had pre-existing conditions.
They’re pacifying the public.
Anyone could die from Cyclosporiasis, but they want you to believe it can’t happen to you.
It can only happen to the weak, the disabled, the elderly.
The expendable people.
Eugenics.
https://www.nytimes.com/2026/08/03/well/eat/cyclospora-deaths-michigan.html
#ableism #publichealth #disability #eugenics #chronicillness #uspol #Cyclospora
Today has been one of the best days of writing I've had in a while 😁
I have to believe that good things happen and that they can happen to me.
$2122 to go and I need it right away!
Please help all you can.
https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @mutualaid @mutualaid@fedigroups.social @disabledvoices @lgbtq @lgbtq@newsmast.community @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
Edited 56d ago
Do you know how awesome it is to see all your bloomscrolling and nature posts, as someone who is very often bedbound due to disability? On the days when I can't leave home, I can experience the beauty of outside world thanks to all your pictures on my timeline. It helps a lot. Thank you, fedi❤️
#bloomscrolling #nature #naturephotography #disabled #chronicillness #chronicillnesswarrior #disability #Bedbound
Got a couple of hours of writing done today 😁
#Writing #AmWriting #WritingCommunity
#ChronicPain #ChronicIllness
Went paddle boarding yesterday, which was great, the weather was superb. But now I'm so spent I don't know how I'm going to get any writing done...
#AmWriting #Indie #Author #IndieAuthor #Writing #WritingCommunity
#ChronicIllness #ChronicPain
Intro to me: If what you believe or do hurts someone else, we have a problem.
Other than that, we're probably good.
I'll post about chronic illness, animals, writing, and dad jokes. I'll go off about stupidity when it's warranted and gush about random facts I've learned.
Sometimes I'll give tech tips for the average user.
Update from the nursing home. My gastroparesis is flaring again and the facility can't provide liquid nutrition. I've been asking since Saturday. The dietician thought I meant broth. The doctor didn't let me explain. They keep bringing me solid food I can't eat.
My mom brought medical food shakes from home that work, but I'm out and she can't keep supplying them. My SSI check this month is $30 because the nursing home takes the rest. That doesn't cover my phone bill, let alone the AI tools I use to function, or medical food if we have to keep buying it ourselves.
If the nursing home can't feed me, my mom may have to pull me out, which could derail the group home placement we've been working toward.
If you can help, here's the link: https://gofund.me/56352d472
If you can't donate, sharing helps. Thank you.
#Disability #Gastroparesis #ChronicIllness #Accessibility #DisabledWriter #NursingHome #MedicalNutrition