New post: Grieving the Version of Me Everyone Thought I Was
https://lanie.work/advocacy/grieving-the-version-of-me/
#Disability #Autism #Blindness #Chronic-Illness #Long-Term-Care #Caregiving #Advocacy
autism
I am finding the story of #JasonArday really tragic. It looks likely he was bullied into suicide by (mostly) the right wing UK press, despite the fact that autists are 9x more likely to kill themselves than the average person, and suicide is the second most common cause of death for autistics. https://www.theguardian.com/uk-news/2026/aug/14/jason-arday-found-dead-after-resigning-from-cambridge-over-plagiarism-claims?CMP=Share_AndroidApp_Other #Autism #autistic #neurodiverse @autistics #AutisticBurnout #ActuallyAutistic
@autistics
Announcement: #Voxelibre multiplayer casual game today (Sat) for 4 hours in the late afternoon to evening (North America). That's in about 6.5 hours from now.
Voxelibre is a free and #OpenSource #Minecraft clone.
Damage has been turned off. People with #Autism, #ADHD or #AuDHD are invited. We also have a #Deltachat group for game-related discussion.
More details here: https://docs.autis.toque.im/
@autistics
Announcement: #Voxelibre multiplayer casual game today (Sat) for 4 hours in the late afternoon to evening (North America). That's in about 6 hours from now.
Voxelibre is a free and #OpenSource #Minecraft clone.
Damage has been turned off. People with #Autism, #ADHD or #AuDHD are invited. We also have a #Deltachat group for game-related discussion. More details here: https://docs.autis.toque.im/
For those of you who may be sensitive to such things. I am going to be talking about chronic illness and especially the complexity of additional conditions later in life. No details, just a general, well, vent I suppose, as part of my process of coming to terms with this and understanding it.
I was born with chronic asthma. In fact, as a very young child, doctors told my parents that I wouldn't make it through the night, on at least two different occasions, it was that bad. It has, in a sense, shaped my life, just as much as my autism/adhd (even though I didn't have a name for that then) and that is because I had to learn to adapt to them in much the same way. By understanding what they would allow and most definitely what they wouldn't. What perhaps I could manage and what would definitely cost too much. It all meant that my life and the choices I made going forward were governed as much, if not more, by what I couldn't do, as by what I potentially could.
And then comes the addition to my elder days of other chronic issues. COPD and a back that is truly fucked, which I believe was the medical terminology used. Suddenly I have a conflict of many separate demands on my resources, any and all of which can be draining and no way of really knowing which will be in play on any given day, above and beyond their natural state of dysfunction and energy drain.
It leaves me, with what I like to call, Schrödinger's drawer. In principle spoons should be in there, but whether they are, or aren't and how many there might be, can't be known until I look inside each day. It makes planning a far more uncertain process, even to something as simple as the next day. In fact, at times, it seems almost impossible. My life filled far more with cannot's and maybes, than with anything else. Something my audhd nature is far from happy with and that can bring a greyness to the world as I realise that I can barely see ahead any more and attempting to do so with any hope is far more difficult.
Still, it is early days and no doubt I will adapt. If there is one thing being audhd all my days has taught me, it is how to do that.
Please note. I am fine and it is still early days. And anyone replying with anything about therapy and getting it, could very well be met with all the withering scorn available to my embattled and gnarly old soul. (But that's just me and therapy)
Edited 100d ago
Hi y'all,
Two weeks ago I shared my survey about improving autism questionnaires on here, looking for participants.
I got so many responses and boosts (thank you all!), and I now only need about 20 more people! 😊
You can participate if you are older than 16, fluent in English and have normal / corrected to normal vision. It should take around 30 minutes!
https://maastrichtuniversity.eu.qualtrics.com/jfe/form/SV_86szgfkwCOBJchw
More infos below, but please lmk if there's questions or feedback!
Edited 263d ago
In a peak move of adulting, I have decided not to do my laundry today. I simply can't be arsed. It has been a rough week heat wise and that therefore means the whole being able to breath wise, what with my COPD, not to mention sleep wise. So, no laundry for me today, even though it is laundry day.
I feel no need to justify this decision, or berate myself over it. After all, allowing myself to not do things is just as important as doing things, in terms of my well-being and management of my needs. Something that we can all be prone to forgetting I think.
Also, because this decision falls squarely into the following two boxes,
Self-care that is choosing not to.
And
Knowing that this can genuinely wait.
Both of which are often not given the importance they are due.
(For further context. I use a communal laundry room. So to do some requires that I get dressed, leave my flat, go down to the floor below and risk all the peopling that could take place, if I am unlucky. As well as having to remember to return for the laundry once the cycle is complete and risk peopling again.)
Send complaints to all the 15 publications that hounded Jason Arday in one go. Also a IPSO complaint.
https://newscord.org/action/jason-arday-pile-on
#Autism #autistic #neurodiverse @autistics #AutisticBurnout #ActuallyAutistic
Edited 86d ago
There has been absolutely no research I can find that explores if autists are more likely to be vegan or vegetarian than the general population. I find this extraordinary.
If you are autistic, (either clinically or self diagnosed) are you vegan?
#Autism #autistic #neurodiverse @autistics #ActuallyAutistic #vegan #VeganFood #AnimalRights
Options: (choose one)
you can’t trust people not
to believe the stupidest shit
.
they cannot be embarrassed by intellectual matters
.
only social ones
.
what could possibly go wrong
.
#ActuallyAutistic #ND #Autism #AuDHD @autistics
RE: https://woof.group/@sentimentaldom/117124054882255683
@autistics wonderful video about speaking out and trying to explain living with #autism
Autistic characters are seldom seen on the big screen in Japan. Syoutarou Kobayasi's "Lives at Right Angles" is a heartfelt, insightful tale of an autistic man's unbreakable bond with his sister. https://www.japantimes.co.jp/culture/2026/08/23/film/lives-at-right-angles/?utm_medium=Social&utm_source=mastodon #culture #film #japanesefilm #syoutaroukobayasi #shotayasuda #non #autism #neurodiversity
If I ever get rich I'm building a village in the forest for autistic people to live in so we don't have to deal with everyone else.
The Western vs #Philippines #Autism public landscape:
1. PH: L2 and L3 women/girls; West: L1 women and men
2. PH: Families, especially mothers, video documents and share online their L2/L3 autistic daughters, at home and publicly (like malls).
In the West: they call it "exploitation".
Is empathy a less reliable basis for morality than people tend to assume?
A thread on empathy, morality, and autistic reasoning ♾️
Empathy works a bit like a spotlight. In its traditional sense, it often illuminates only a certain bit of the landscape (the bit that’s in front of us, or that we choose to see) but not all of it.
That's a problem if we confuse that with morality, or 'goodness'.
⬇️
#ActuallyAutistic #Neurodivergent #Autism #Empathy #Morality #SocialJustice #CriticalPsychology #AutismResearch
Edited 53d ago
The Other Mind | Autism, Cognition, Identity is live on Medium. The world is the subject, the autistic mind the lens: essays on cognition, identity, and human difference.
I'm realizing that the reason I never seriously considered autism for myself for so long is that, among many of those I am closest to back home, I am the least autistic.
What I mean by less autistic is that if you screened us for autistic traits, I would be closer to the average human on most of what is measured than many of those I am closest to.
I still appear to fall well outside the norm, though.
In the land of the blind, the one eyed man is king.
RE: https://mastodon.thenewoil.org/@thenewoil/117304551140632429
RELATED
was diagnosed #actuallyAutistic at 50. so, as a former educator and actress, it made me go down a path of self-reflection on what in USA is supposedly #autism. reckoned a lot of it are CULTURAL assumptions.
like eye contact.
in Puerto Rican culture direct eye contact among strangers is considered an act of aggression. so we do it differently.
that’s why i cannot understand why unitedstatian “normies” would look into the eyes of this very obvious animation and not see them DEAD 🧵…
@autistics Announcement: #Voxelibre multiplayer casual game today (Sat) for 4 hours in the late afternoon to evening (North America). That's in about 7 hours from now.
Voxelibre is a free and #OpenSource crafting and mining voxel game, available in the #luanti game engine. 
Damage has been turned off. People with #Autism, #ADHD or #AuDHD are invited. We also have a #Deltachat group for game-related discussion. More details here: https://docs.autis.toque.im/
(You can join with pretty much any device which **isn't** an iPad/iPhone)
Edited 53d ago
@autistics
Announcement: #Voxelibre multiplayer casual game today (Sat) for 4 hours in the late afternoon to evening (North America). That's in about 8.5 hours from now.
Voxelibre is a free and #OpenSource crafting and mining voxel game, available in the #luanti game engine.
Damage has been turned off. People with #Autism, #ADHD or #AuDHD are invited. We also have a #Deltachat group for game-related discussion. More details here: https://docs.autis.toque.im/
(Note: You can join with pretty much any device which **isn't** an iPad/iPhone)
I just realised a stim I have. I very gently clack my front teeth together in time with car indicators when they're left on for more than 5 or so seconds.
#Autism #autistic #neurodiverse @autistics #AutisticBurnout #ActuallyAutistic
Depictions of autism in Japanese film have evolved considerably, but "we have a long way to go," says Syoutarou Kobayasi. Read our interview with Kobayasi on the background and development of "Lives at Right Angles." https://www.japantimes.co.jp/culture/2026/08/30/film/syoutarou-kobayasi-interview/?utm_medium=Social&utm_source=mastodon #culture #film #japanesefilm #syoutaroukobayasi #shotayasuda #non #autism #neurodivergence
"‘Alarm bells were going off’: parents tell of ordeal at Send school closed down after abuse allegations" - https://www.theguardian.com/education/2026/sep/01/parents-tell-of-ordeal-at-send-school-closed-down-abuse
#education #disability #specialeducationalneeds #autism
Maybe it is actually #alexithymia speaking, but I am pretty sure I can’t feel hate.
Like, I can feel despise, disgust, loathe, horror, fear etc - but hate? Hate assumes certain amount of passion, strength - it’s something too big to bother to maintain for someone you don’t like.
Maybe it’s just my #autistic negation to use definitive labels - like the hesitancy to consider what I can feel ‘love’ or to call someone a friend.
It kinda makes logical the overlap between #autism and #adhd
Also, to me personally it’s interesting that it mentions connections between cortex and deeper regions, because in my teens, I had a bunch of encephalograms, and they said that I have irregular cortex - subcortex connections with increased cortex control, and I now wonder if those things are related
#AuDHD
@autistics