Hello to all the ME/CFS and Long Covid activists out there đź‘‹
Solve ME and #MEAction are joining forces to work on a medical education initiative for this year's Advocacy Week, March 23-27.
More details:
https://solvecfs.org/registration-open-for-me-cfs-advocacy-week-2026/
Registration link (Google docs form):
https://docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform
"Power, Progress, and Patient-Led Change"
An overiew of Advocacy Week 2025 from Solve ME:
https://solvecfs.org/advocacy-week-2025-power-progress-and-patient-led-change/
"In a single week, the Solve M.E. community took part in 187 congressional meetings—sharing powerful personal stories, urgent data, and clear policy goals with Senate and House offices."
@mecfs @longcovid
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#USPol #MEcfs #LongCovid #POTS #Congress #Senate #Advocacy #SolveME
![How can we close the knowledge gap in ME/CFS and Long COVID care?
The Ask: We will meet with state and local healthcare leaders and ask for their support for introducing questions on ME/CFS and Long COVID medical exams at the national level.
The Theory of Change: By reaching out to patient safety/regulatory agencies, State Medical Boards, and State Health Leadership/Chief Medical Officers by state, framing ME/CFS education gaps as a patient safety and standard-of-care issue, we will move IACC’s [Infection Associated Chronic Conditions] such as ME/CFS and Long COVID from “optional knowledge” to “standardized knowledge” in clinical care.
Target: State healthcare leadership and patient safety agencies.](/proxy/post_attachment/1006754/43e537ca10.png "How can we close the knowledge gap in ME/CFS and Long COVID care?
The Ask: We will meet with state and local healthcare leaders and ask for their support for introducing questions on ME/CFS and Long COVID medical exams at the national level.
The Theory of Change: By reaching out to patient safety/regulatory agencies, State Medical Boards, and State Health Leadership/Chief Medical Officers by state, framing ME/CFS education gaps as a patient safety and standard-of-care issue, we will move IACC’s [Infection Associated Chronic Conditions] such as ME/CFS and Long COVID from “optional knowledge” to “standardized knowledge” in clinical care.
Target: State healthcare leadership and patient safety agencies.")
