Eggplant.place

1y

I never thought I'd end up with a chronic illness where the most useful health advice comes from an old Vaudeville joke:

Patient: Doc, it hurts when I do this!

Doctor: Then don't do that!

#MEcfs #LongCovid #NEISvoid #PEM #StopRestPace #Humor

Edited 1y ago

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50d

"Why I Can’t Just Meet You for Dinner"

https://substack.com/home/post/p-178293036

A description of PEM (post-exertional malaise) along with some tips for how to explain it to loved ones.

"Post-exertional malaise (PEM for those of us who live with it intimately) is not tiredness. It’s not even exhaustion.

It’s a systemic crash that occurs after physical, cognitive, or emotional exertion that exceeds your body’s brutally reduced energy envelope."

@mecfs @longcovid

#MEcfs #LongCovid #PEM #ChronicIllness

Here’s what most people don’t understand: PEM isn’t just a temporary setback. Frequent PEM crashes have compounding effects.

Every time you push through PEM (every time you ignore the warning signs and keep going because you have to work, or because someone is visiting, or because you’re trying to maintain some semblance of a normal life) you’re not just paying the price in the moment. You’re potentially worsening your baseline function permanently.

ALT

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3d

"Multiple Abnormal Responses to Exertion Seen in ME/CFS"

https://www.medscape.com/viewarticle/multiple-abnormal-responses-exertion-seen-me-cfs-2026a10000q1

"Fundamentally, the ME/CFS patient’s response to exercise is very different and very impaired…
These are objective changes in the bodies of these patients that correspond with what the patients are saying"

@mecfs

#MEcfs #PwME #PEM #Research

Study Series Shows a ‘Profound, Disrupted Response to Exercise’

This paper is the latest in a series of studies from the Cornell research team of the same participant group. One published in 2023 showed delayed recovery from exercise, while another in 2024 showed impaired cardiopulmonary and metabolic responses in 2-day CPET testing.

“The whole body of work on this very well-characterized cohort is showing that there is this very profound, disrupted response to exercise. And again and again, we find the largest changes are from immediately post-exercise to 24 hours later, which we call the ‘recovery period’ from exercise because the healthy controls have recovered, but patients have not. And it does correlate with the symptom severity data, where patients are reporting that they have increases in post-exertional malaise,” Glass said.

ALT

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pem