#myalgicencephalomyelitis Timeline

28d

🧵
I'm honoured to be recognised in this way by the Belvedere Union 😊

Screenshot of their full announcement in the next post.

[In recent years, I’ve cut back a bit from a fairly hectic level of activity but there's still plenty to do, so no plans to retire any time soon]

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

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1y

#MEAction has announced their Severe ME Artists Project for 2024 in recognition of Severe ME Day on August 8th.

Anyone who identifies as having severe ME can participate. Artists can submit past artwork created before they got sick.

Submissions are due by July 25.

See link for full details:

https://www.meaction.net/2024/06/26/severe-me-artists-project-2024/

@mecfs

#MEcfs #SevereME #Art #MyalgicEncephalomyelitis

"Severe ME Artists Project 2024" is written in white on a multicolored background.

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1y

"#LongCOVID & Chronic Fatigue [Syndrome]: The Similarities are Uncanny"

Great to see this article in Medscape which includes comments from numerous UK-based researchers and charity representatives

https://www.medscape.co.uk/viewarticle/long-covid-chronic-fatigue-similarities-are-uncanny-2024a1000d17

#MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Long COVID & Chronic Fatigue: The Similarities are Uncanny
Annie Lennon | 16 July 2024
An estimated two million people in England and Scotland were experiencing symptoms of long COVID as of March 2024, according to the Office for National Statistics. Of these, 1.5 million said the condition was adversely affecting their day-to-day activities.
As more research emerges about long COVID, some experts are noticing that its trigger factors, symptoms, and causative mechanisms overlap with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

ME/CFS is characterised by severe fatigue that does not improve with rest, in addition to pain and cognitive problems. One in four patients are bed- or house-bound with severe forms of the condition, sometimes experiencing atypical seizures, and speech and swallowing difficulties.

Despite affecting around 250,000 people in the UK and around 2 million people in the European Union (EU), it is a relatively poorly funded disease research area. Increased research into long COVID is thus providing a much-needed boost to ME/CFS research.

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173d

#MillionsMissing 2025: Sending Out An SOS

Reminder: Two planning meetings for #MEAction Millions Missing 2025 (for ME/CFS Awareness Day - May 12) are scheduled for tomorrow!

https://www.meaction.net/2025/04/08/why-were-sending-out-an-sos-this-millionsmissing/

Here's how to sign up

Meeting 1: Thursday, April 10, 12 pm Pacific, 3 pm Eastern

https://us06web.zoom.us/meeting/register/EHwZzzubSpqIi31vM1VRNQ#/registration

Meeting 2: Thursday, April 10, 3 pm Pacific / 6 pm Eastern

https://us06web.zoom.us/meeting/register/2hriH4c1RU6VbSGbEBrjHA#/registration

@mecfs

#MEcfs #PwME #MEAwareness #MyalgicEncephalomyelitis #May12

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54d

Message from DecodeME:

"Key genetic differences found in people with ME/CFS ...

These findings reflect the lived experience of thousands of #pwME.

Thanks to all our participants & supporters who made this possible!

Read a summary of our results:
https://www.decodeme.org.uk/initial-dna-results/"

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@mecfs

#MEcfs #MyalgicEncephalomyelitis #PwME #DecodeME

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"DecodeME: The Results" graphic. At the top in bold lettering, it says "Main Findings." Beneath this it says, "Your genes contribute to your chances of developing ME/CFS. Other key findings are on the following slides."

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